Lily Lookout was eight years old when she was diagnosed with Acute Lymphoblastic Leukemia. She is now eleven and has been in remission for almost two years. She will be finishing her chemotherapy treatments on Oct. 22.
"Lily has a genetic marker that puts her at a higher risk for relapse of 85% so, we are in a wait to see what happens situation," said her uncle and caregiver, John Leland. "She could go a year or five years or two months, no one knows what will happen. The chance of relapse is higher within the first year."
She will be completing lab work every two weeks if her numbers stay in remission range and her tests come back negative for leukemia cells.
Lookout was diagnosed in 2014 after complaining to her uncle and aunt after a Memorial Day outing with friends at the lake and falling off an inner tube and hurting herself. She later developed a cough that hurt her back and side. She had several tests and as her condition worsened the doctors ordered a bone marrow biopsy and confirmed the diagnosis of Leukemia.
During her time in remission, she and her family were selected from the Make-A-Wish Foundation for a trip to Disney World and Universal Studios in Florida. The trip was almost ruined by Hurricane Matthew but Lily said it was fine and Universal Studios was her favorite.
"I want to be a nurse so I can help kids like me when I get older," she said.
She said everyone at the hospital was a lot of fun and her favorite nurses are Chastity, Renee, Dianne, Rusty, and Hailey – but she will be happy about not going to the hospital as often. She didn’t like being poked in the chest so much, and she did not like having to miss so much school because of her homework load she would have.
Lily enjoys riding bikes with friends and listening to music and she is a cheerleader for the Pawhuska 5th-6th grade cheerleading squad.
Lookout is the daughter of Taylor Horn and Michael Lookout and the granddaughter of Tricia and Roscoe Mays, Bobby Horn and Ira Lookout, the late Lisa McGuire and the niece to caretakers John Leland and Lauren Leland.